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End of Life Resource

A Pathfinder for Print and Electronic Resources

Guide For Patients

Downloadable text of "Home care guide for advanced cancer: when quality of life is the primary goal of care", a very good guide for caring for the terminally ill at home.

Bereavement and Hospice Support Netline [http://www.ubalt.edu/www/bereavement]

The site itself is apparently underfunded but maintains many links.

Cancer Care, Inc. [http://www.cancercareinc.org}

Cancer Care, Inc is aimed primarily at patients and families. This site includes information about and links about counseling and emotional support, cancer and its treatments, referrals to other support services, educational seminars and conferences, counseling on financial needs and professional consultations and educational programs.

Candlelighters Childhood Cancer Foundation [http://www.candlelighters.org/]

" The Candlelighters Childhood Cancer Foundation (CCCF) was founded in 1970 by concerned parents of children with cancer... Our mission is to educate, support, serve, and advocate for families of children of cancer, survivors of childhood cancer, and the professionals who care for them." There are many links here for professionals and patients/families concerned with pediatric oncology.

Choice in Dying [http://www.choices.org]

"Choice In Dying, the inventor of living wills in 1967, is dedicated to fostering communication about complex end-of-life decisions. The nonprofit organization provides advance directives, counsels patients and families, trains professionals, advocate s for improved laws, and offers a range of publications and services." The site contains background material on end-of-life issues, legal developments, state-specific issues concerning advanced directives, various publications including videos and links.< p> Connecticut Association of Not-for-profit Providers For the Aging (CANPFA)

Connecticut Coalition to Improve End-of-life Care committed to improving care of the dying.

Growth House [http://www.growthhouse.org]

The Webmasters of this site are not shy. "This award-winning web site is your international gateway to resources for life-threatening illness and end of life care. Our primary mission is to improve the quality of compassionate care for people who are dying through public education and global professional collaboration. " In fact, they provide links to an enormous array of sites concerned with end-of-life issues.

Improving Care at the End of Life [http://www2.nas.eduhcs/21da.html]

Last Acts [http://www.lastacts.org]

"Last Acts is a call-to-action campaign designed to improve care at the end of life. Our goals are to bring end-of-life issues out in the open and to help individuals and organizations pursue the search for better ways to care for the dying." Associated with the Robert Wood Johnson Foundation, this wide-ranging site provides information for healthcare professionals and administrators, policy makers, public and families, writers and journalists as well as associated organizations.

Resource Center for State Cancer Pain Initiatives [http://www.wisc.edu/molpharm/wcpi]

The Wisconsin Cancer Pain Initiative (WCPI) is - if not the first - one of the first and most active of the state cancer pain initiatives. "The WCPI is dedicated to overcoming the barriers that prevent the relief of cancer pain. It is a voluntary, gr ass-roots organization of health care professionals and representatives of higher education and government ." These are patient education, professional education, public education, regulatory updates and making pain management a priority in all healthcar e settings.

Tools and Guides from the ABCD site -- Americans for Better Care of the Dying.